Friday, April 23, 2010

Lyme.. Introducing Candice

Have you met Candice?
  
She is a fellow blogger from California who has Lyme. 
I am highlighting her here on MY little blog today. 
See, May is Lyme Awareness month..

and all those who have Lyme disease
who have HAD Lyme disease
who love someone with Lyme disease
or have lost someone to Lyme disease
are working VERY hard to
try to spread the word ABOUT Lyme disease
to the whole rest of the wide world
we are trying to go ALL out
because frankly..
alot of the information OUT there is not all together accurate
or completely truth filled...
some of it, is well.. lets say .. rather
MISleading
some of it.. is just plain
wrong...
and all of it can lead to people getting sicker
and sick people getting still sicker
and healthy people
you guessed it...
getting sick
and NOT getting diagnosed..
and that ..
has to stop.
I have had Lyme disease for ..
gee..
this summer will be 20 years.
that is a long time.
Candice is really sick..
She is MUCH
 much
much
sicker than I am..
She is only 21 years old.
She has a whole beautiful life before her
trips that need to be taken
to beautiful places
very interesting people that need to be met
exotic foods that need be tasted
thankfully
God created Candice 
with a fighting spirit
a girl with HOPE 
infact her Optimism is Infectious :)
you should check out her site...
Candice is making a difference by researching and sharing the information she has gathered.  Sharing her perspective on WHY we are where we are at in the Lyme community.. let me just quote her here.
"The way Lyme Disease is currently being handled is much like the way AIDs was handled when the AIDs epidemic first arose. Patients who were infected with HIV were doubted, because the infection was so rare, understudied, and controversial. The patients were denied treatment and made to feel as though they were crazy, and that it was all in their head, despite their obvious illness and failing bodies. One of the leading Lyme doctors on the East Coast was actually initially an HIV doctor, and diagnosed one of the first cases of AIDs in North Carolina. He stuck loyal to his HIV patients despite the controversy surrounding the disease. He now primarily treats Late Stage Lyme Patients. It is reported that unfortunately, Lyme Disease is shaping up to look like an even greater epidemic than AIDs. This doctor asserts though, that compared to the research that was being done on HIV in the beginning of the AIDs epidemic, Lyme Disease research right now is alarmingly elementary and rather non-existent."
The thing we all need to keep in mind is, you don't
(traditionally)
get lyme from needles and doing drugs. 
Though, frankly you can. 
You don't just get it from not using a condom..
Though the verdict on THAT is still out. 
There is plenty of evidence that proves it does pass throught the placenta
and can be excreted through breast milk
You CAN get it from a tick..
you may NEVER see the tick
you can get it from your pet or a friends pet that picked it up and brought it indoors
so you needent have even gone for a walk in the woods...
birds can carry them,
dogs, cats, bunnies, squirrels any animal can carry them...
meaning the little ticks can "hitchhike"
they can be on that log you brought in to burn in the fire place...
the sucker could just be crawling about your home
& land on you
thanks to Fido :)
INSPECT your pets!
and respect your VETS !
all to often I hear people say
 "the vet said my dog has lyme but I don't believe it..."
IF YOUR PET has it
and you or any member of your family has strange symptoms
Mostly people get them when at parks, or on walks...
Mostly it's just plain ol smart to tuck your pants into your socks
to wear long sleeves when out doors
and we all know..
THAT happens in 90 degree weather
so perhaps some proper tick spray..
and be sure to have a tick remover ..
now remember THIS will only work
IF you see it
and these little buggers have a numbing agent
that prevents you from feeling them burrow ...
and 
only an estimated 30-40% ever get that 
FAMOUS bullseye rash
some people get a rash that looks
 NOTHING like
a bullseye
and others 
never get any rash at all.
YOU will NOT
get Lyme from
lets see
...
hugging a friend or loved one with Lyme
shaking hands,
or holding hands.
smooching...
(for you young HIP readers it means KISSING!)
you won't get it from lets see... umm
sharing a bowl of popcorn and watching a movie
with your pal whose feeling icky..
or
sharing a meal
or
grabbing a cup of tea together
or
calling them on the phone
you will NOT get it from writing them a note
or from smiling at them
or from listening to them when they need to talk
or from asking questions
but you might learn a lot..
about yourself
about your friend
about things you never dreamt of learning about... 
So grab a cup of cafe
&
don't be afraid
to sit
and listen
and
love
Lyme disease IS found in
EVERY one of our fine
50 states
suprised?
I was
It is also found
in many other countries besides...
It is often combined with what is called
co-infections
or what those who have lyme loveingly refer to as
LYME & CO.
more on that.. 
another day...
suffice it to say..
there is MUCH to learn..
and I have been LEARNING 
so does this sound like...
ummmmm
an epidemic???
well.
Good Morning America
it is

2 comments:

Anonymous said...

Your post has officially touched my heart <3 Thank you so much for sharing my words, but for also adding to them and using your own insight and talent to make them even more powerful.

I look forward to continuing to follow your story and get to know you...I will now be with you, cheering you on, every step of the way!

Candice

mom nana nelson said...

WOW Anika, I learned many things from this post. Chock full of good information you are.
In fact I am going to go read your post again. There is alot to take in.
Thank You Girfriend! This is god stuf. :) <3